Tag: huntington’s disease
-
Evil villain ‘No HEART’
The author discusses maintaining a positive demeanor despite personal struggles, emphasizing stoicism and humor. They support loved ones while navigating their own emotions, often feeling misunderstood but committed to resilience.
-
Flare Bear Rules !
The narrator describes living with chronic pain, personifying it as “flare bear,” a controlling figure that influences emotions and sensations. Humor and disassociation help manage the emotional burden of pain.
-
Going on a cool adventure
Today we are going on an adventure. Hopefully we can manage with the flare bear and get him to take a chill pill so we can do something fun as it’s the weekend and I just want to do something instead of sitting in the house. Take a ride in the car …roll down the…
-
My Hands!!
The author struggles with pain in their elbows, hands, and fingers, leading to lowered standards and reliance on their partner.
-
15 minutes … 11 Floors
After a crazy busy weekend and on my rest day mama N (mother nature) decided to send us a wicked rain storm. Clearly she really needed to vent and let it out on us poor souls living in the north end of town. It was reported that we got 80mm of rain during…
-
Turtle pace to win this race !
A busy weekend involved managing dog care and cleaning, balancing demands while attempting to pace and avoid fatigue from activities.
-
How can you drive like that???
The author describes their unique driving technique, struggles with pain, and choice to abstain from alcohol, emphasizing their commitment to manage chronic pain while maintaining independence and supporting friends.
-
Let’s get spicy?
Ok so my taste and smell are messed up. Ever since I got sick with covid a while back and got the strain with losing smell and taste, it’s never been up to snuff. I mentioned this to my Dr a while ago and she said that I could go to therapy for that,…
-
Good intentions…change of plans!
The narrator discusses personal challenges, including a cancelled vacation and family health concerns. They contemplate a baby shower but decide to delay it due to current stressors, emphasizing adaptability amidst life’s difficulties.
-
Is Busy good? Or Bad?
The weekend was busy and enjoyable despite exhaustion and a lingering headache. Socializing led to minor flare-ups, but overall, the experience was successful, capped off with fireworks and family time.
My Everest... 