Tag: huntington’s disease
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DD …?
The author faced a dilemma when her husband drank at their son’s wedding. After assessing his condition, they arranged alternative rides home, ultimately getting home safely with assistance from family.
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To take pictures or not?
The narrator shares their wedding day preparations, from a rainy morning to salon experiences, unexpected challenges with photography, and the joy of witnessing their son’s marriage, all while navigating minor mishaps.
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Wagon Lady !
This past week has been busy with baking for the wedding and running around with some last minute things here and there. It hasn’t been bad with the flare bear but I am ever weary of him as you never know what he will cook up. Also scout meetings are starting up as well so…
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I feel like GUMBY!
After acupuncture, a walk exacerbated arm pain, leading to sleeplessness, prompting a message to the physio about the worsening condition.
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Yummy Everything!!!
Balancing wedding preparations, baking, and personal grooming amidst family visits and unexpected events, while managing stress and staying organized.
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Evil villain ‘No HEART’
The author discusses maintaining a positive demeanor despite personal struggles, emphasizing stoicism and humor. They support loved ones while navigating their own emotions, often feeling misunderstood but committed to resilience.
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Flare Bear Rules !
The narrator describes living with chronic pain, personifying it as “flare bear,” a controlling figure that influences emotions and sensations. Humor and disassociation help manage the emotional burden of pain.
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Going on a cool adventure
Today we are going on an adventure. Hopefully we can manage with the flare bear and get him to take a chill pill so we can do something fun as it’s the weekend and I just want to do something instead of sitting in the house. Take a ride in the car …roll down the…
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My Hands!!
The author struggles with pain in their elbows, hands, and fingers, leading to lowered standards and reliance on their partner.
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15 minutes … 11 Floors
After a crazy busy weekend and on my rest day mama N (mother nature) decided to send us a wicked rain storm. Clearly she really needed to vent and let it out on us poor souls living in the north end of town. It was reported that we got 80mm of rain during…
My Everest... 