Tag: huntington’s disease
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No PFD’s for you !
The author reflects on family drama around Huntington’s Disease, emphasizing collective understanding and support, not just personal grievances.
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Barrel of monkey fun
Experiencing stiffness and soreness, the author discovers their social media profile has been hacked. They attempt to protect friends, change passwords, and seek technical support, feeling overwhelmed by stress and physical discomfort along the way.
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I love getting New things!
The author reflects on a shift from valuing new possessions to cherishing old ones, influenced by physical limitations. They recount a struggle buying a lightweight vacuum, leading to frustration with decision-making and future implications.
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The Need to Move!
Arrgh too much sitting In one position is not good for anyone!! Well, when asked what my weekend was looking like at one point and I said not much, it turned into craziness. Historically this week/weekend in my life was always busy with scout stuff to do. Ironically partly it turned out to be…
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Warning …Grumpy Bear ALERT !
As I got to know my way around my body I would notice that certain things made a difference as to whether it would flare it up or just simply irritate it somewhat to the almost breaking point. There is always something new to learn like the yarn fiasco that my hands and fingers are…
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Q.O.T.D ??
The author’s daily struggle with pain is intertwined with their commitment to treatment and communication. Despite challenges, including fatigue and recent health improvements, they persist in managing their condition and expressing themselves. Support from others has been invaluable.
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Evil Cotton Balls and more…
I had a visit from my favourite furry 4-legged friends the other day. Honestly If they can’t make you feel good no one can! Instant smiles from everyone! Including them…running around checking everything out, tails wagging happily. Toys in their mouths just being their goofy selves when they greet people! It was great…
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According to the book of NERDOLOGY!!
The author discusses their challenges with a condition affecting their body, humorously termed “flare bear.” They highlight their frustrations, treatment processes involving desensitization with cotton balls, and urge others to seek necessary healthcare without delay.
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Help ME !!!! I have entered the 7th circle of Dress shopping hell !!!
The author reflects on the physical challenges of dress shopping, describing how it exacerbates their pain and discomfort. They detail the exhausting process and express a desire for a more comfortable shopping experience, highlighting the struggle involved.
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Pain + Life= Ownership
The author reflects on feedback received about a poem on pain, emphasizing the importance of positivity, seeking help, and gradual progress through challenges. They advocate relying on support systems during tough journeys and maintaining a proactive mindset.
My Everest... 