Tag: huntington’s disease
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When Hubby’s away, I will play!
The author reflects on managing post-activity fatigue amid a busy schedule filled with appointments and commitments. Despite physical challenges and a rainy day, they emphasize the need for proper rest, socialization, and personal time to recharge.
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HD Walk
The day involved a successful team walk with 26 participants, followed by exhaustion from the event and personal errands. Later, a long sleep was disrupted by discomfort and reminiscence of travel frustrations.
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Comfortable? Like that??
The author reflects on managing posture and pain during physiotherapy, describing challenges in maintaining proper alignment and communication about symptoms while avoiding triggers that exacerbate their condition.
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Doggy fun
The author shares experiences visiting their son and fiancée, emphasizing joyful moments with their dogs, particularly giving belly rubs, despite having discomfort in their hands. Love for the pets prevails.
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Don’t let him Win!!!
The week involved preparations for a family visit, including extra food purchasing and laundry. Despite pain and exhaustion, the narrator embraced help and enjoyed the family gathering, highlighting the challenge of managing chronic pain while staying active.
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The power of a question…
The author reflects on how responses to the question “how are you?” vary based on the relationship with the asker, highlighting a personal incident in a waiting room where an acquaintance overshared his health issues, prompting contemplation on communication boundaries.
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Beautiful Prison
The author reflects on their experiences of feeling confined at home, referring to it as a “Beautiful Prison.” They emphasize the importance of brief escapes for mental health, sharing personal stories of isolation and yearning for freedom outdoors amidst challenging circumstances.
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I need a new pillow..or do I??
The quest for the perfect pillow involved trying various types, including a buckwheat pillow, a too-soft memory foam pillow, and finally a supportive memory foam with cooling gel, which provided a comfortable night’s sleep.
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Cotton Candy Dream
The conversation reflects on the challenges of Huntington’s disease and the realities of long-term care homes, emphasizing the desire for a peaceful end while acknowledging the emotional toll on families.
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Stand on guard
Acupuncture has helped calm symptoms, though occasional numbness and tingling in fingers continue to create anxiety about potential issues.
My Everest... 