

Today we are going on an adventure. Hopefully we can manage with the flare bear and get him to take a chill pill so we can do something fun as it’s the weekend and I just want to do something instead of sitting in the house. Take a ride in the car …roll down the windows and listen to music and just go out and do whatever. No plans, just anywhere but here stop somewhere and grab lunch and a coffee and just relax for a little bit. That is what we ended up doing, drove down the county roads and just kept going. Hit the nearest cool looking town and went into hubby’s favourite store and picked up a few gadgets for home and wandered a bit more grabbed some really good

calzones for a bite to eat, and topped it off with some really good ice cream and then back to the car and bumbled down the road home again. The flare bear was hanging around but he didn’t surface thankfully! He was fine with all of it, even if my hand and elbows are still in pain.
My hubby and I had an interesting conversation, as he thinks I don’t see anyone’s pain but my own. It’s not the first time he has said that and I must say it does annoy me as I do see other people’s pain, like his for example and I do comment on it. However when I ask him if there is something he wants to do about it the answer is always nope they won’t help. He thinks that just pushing through the pain is the solution. I do that too but sometimes the flare bears grip is way too much and when he delivers a knock down drag out punch to my system it take a while to get me back on track. But apparently the logic there is to push through that plateau as well. I told him that he clearly doesn’t understand what I go through if he thinks I’m giving up. It’s either rest or end up in the hospital. What would you choose? He is aware of my pain as I tell him when I’m flared up badly or on the verge. But is being aware of it and understating it the same thing? No! If there was more understanding of the pain and the flare bear then he wouldn’t be saying certain things that anger me and therefore start an argument as a result. Then there is me trying to explain my pain to him or anyone. It’s a daunting and difficult task for anyone. But I will keep trying, maybe something, somewhere at some point will help flip the light switch and give me or the person I am explaining it all to an “ah ha!” moment. Then we will be alright.


Leave a comment