Tag: huntington’s disease
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My Body is a gift ??!!!
The author discusses their recent pelvic health physiotherapy appointment, expressing frustration over experiencing flare-ups from Kegel exercises. They also face conflicting health advice regarding diet changes for cholesterol and B12 deficiency, feeling overwhelmed and emotional.
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I think i’m a bit better …d’oh!
The author has been experiencing issues with walking due to hip and body pain. Physiotherapy and communication with the physiotherapist have been instrumental in managing the situation. The body’s response led to a 3-day flare, but treatment provided relief.
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There’s physio and then there’s PHYSIO!!
The author recounts their experience at home after discharge. They navigate pain management, outpatient physio, and frustrations with a new physiotherapist. They also reflect on the reasons for a prolonged hospital stay and express gratitude towards supportive figures.
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Hospital is not home
While in hospital I had some time to contemplate what this all was that was happening to me. As you are most certainly not sleeping. Hospitals are good for one thing: getting care and meds. The food that they serve you even the homeless people would not eat. One day I was feeling quite…
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CAG Repeats – HD Walk
The writer reflects on family gathering, expressing gratitude for support of Huntington Society. They share a creative team t-shirt idea for a walk fundraiser, and embrace progress despite health challenges.
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Live Life to it’s Fullest!
A heartwarming encounter with elderly neighbors prompts reflection on seizing life’s opportunities before it’s too late. The author’s determination to make the most of each day, in light of a potential health issue, is evident. Amidst this, special moments with a beloved canine friend add joy to their days.
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A Memorable Past
A memorable past My life prior to this was busy. As my neighbor would describe it, there was never a time when I wasn’t in the car with or without kids in tow…mostly in tow, driving them to their activities. Sometimes when my husband and I worked shifts we even played the single parent…
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Hello? Pain??
This content explores the fluctuating experiences of living with chronic pain and the challenges of pacing physical activities. It emphasizes the unpredictable nature of pain and the need for self-care and adaptation.
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“Normal” People
The narrator addresses judgmental onlookers, highlighting their hidden health struggles and the impact of judgment. They emphasize the need for empathy and understanding, urging others to refrain from quick conclusions and criticism.
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Self Care
This journal documents the author’s journey with unconventional pain relief methods such as nerve blocks, chiropractic care, and physiotherapy. They stress the importance of self-advocacy in healthcare and urge others to try alternative modalities before dismissing them.
My Everest... 