Tag: huntington’s disease
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Puzzling..puzzled???
The author reflects on their own struggles with pain while supporting friends facing similar challenges. They emphasize the importance of understanding and being present through difficult times, likening the healing process to assembling a scattered puzzle.
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Central Sensitization Roulette!!!
The author humorously likens their pain management struggles to a roulette game, highlighting the unpredictability of symptoms caused by Central Sensitization. They express frustration with the medical community’s lack of understanding regarding chronic pain and its implications.
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I Love my Flare Bear…not!!
The author reflects on the challenges of post-Christmas activities and the physical toll they take. Feelings of inadequacy arise when considering future limitations with family, prompting an emotional response as they seek solace in writing.
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SHOUTING makes everything better!!!
Family conflicts create stress and emotional turmoil, affecting relationships.
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God’s Waiting Room
Nursing homes provide essential care for loved ones nearing the end of life. The narrator reflects on personal experiences with grief and the awkwardness of visiting, emphasizing the importance of maintaining humor and dignity in such situations.
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1 year HD Checkup!!
The narrator shares their experience leading up to a medical appointment for Huntington’s Disease testing, expressing anxiety and uncertainty. They recount the various cognitive tests they were subjected to and the initial confusion of a clinical fellow who failed to review their medical history. Ultimately, they received reassuring news that they were clear for another…
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Flare Bear
The author shares experiences with chronic pain, referred to as “Flare Bear,” discussing the unpredictability of flare-ups and the emotional toll they create. They emphasize seeking support from friends and family during difficult times.
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Ding ding Med cart’s here!!!
The author discusses the overwhelming experience of managing multiple medications and the potential need to reduce them, as well as experimenting with new therapies, highlighting the challenges and unexpected reactions during treatment.
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OH Yeah sucker !! Take that
The author shares their physio session experience, noting improved range of motion despite discomfort from recent injuries. They discuss managing pain and the effects of migraine and radiculopathy, highlighting the challenge of sleeping comfortably.
My Everest... 