Tag: huntington’s disease
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God’s Waiting Room
Nursing homes provide essential care for loved ones nearing the end of life. The narrator reflects on personal experiences with grief and the awkwardness of visiting, emphasizing the importance of maintaining humor and dignity in such situations.
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1 year HD Checkup!!
The narrator shares their experience leading up to a medical appointment for Huntington’s Disease testing, expressing anxiety and uncertainty. They recount the various cognitive tests they were subjected to and the initial confusion of a clinical fellow who failed to review their medical history. Ultimately, they received reassuring news that they were clear for another…
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Flare Bear
The author shares experiences with chronic pain, referred to as “Flare Bear,” discussing the unpredictability of flare-ups and the emotional toll they create. They emphasize seeking support from friends and family during difficult times.
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Ding ding Med cart’s here!!!
The author discusses the overwhelming experience of managing multiple medications and the potential need to reduce them, as well as experimenting with new therapies, highlighting the challenges and unexpected reactions during treatment.
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OH Yeah sucker !! Take that
The author shares their physio session experience, noting improved range of motion despite discomfort from recent injuries. They discuss managing pain and the effects of migraine and radiculopathy, highlighting the challenge of sleeping comfortably.
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My Body is a gift ??!!!
The author discusses their recent pelvic health physiotherapy appointment, expressing frustration over experiencing flare-ups from Kegel exercises. They also face conflicting health advice regarding diet changes for cholesterol and B12 deficiency, feeling overwhelmed and emotional.
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I think i’m a bit better …d’oh!
The author has been experiencing issues with walking due to hip and body pain. Physiotherapy and communication with the physiotherapist have been instrumental in managing the situation. The body’s response led to a 3-day flare, but treatment provided relief.
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There’s physio and then there’s PHYSIO!!
The author recounts their experience at home after discharge. They navigate pain management, outpatient physio, and frustrations with a new physiotherapist. They also reflect on the reasons for a prolonged hospital stay and express gratitude towards supportive figures.
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Hospital is not home
While in hospital I had some time to contemplate what this all was that was happening to me. As you are most certainly not sleeping. Hospitals are good for one thing: getting care and meds. The food that they serve you even the homeless people would not eat. One day I was feeling quite…
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CAG Repeats – HD Walk
The writer reflects on family gathering, expressing gratitude for support of Huntington Society. They share a creative team t-shirt idea for a walk fundraiser, and embrace progress despite health challenges.
My Everest... 