Tag: huntington’s disease
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Live Life to it’s Fullest!
A heartwarming encounter with elderly neighbors prompts reflection on seizing life’s opportunities before it’s too late. The author’s determination to make the most of each day, in light of a potential health issue, is evident. Amidst this, special moments with a beloved canine friend add joy to their days.
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A Memorable Past
A memorable past My life prior to this was busy. As my neighbor would describe it, there was never a time when I wasn’t in the car with or without kids in tow…mostly in tow, driving them to their activities. Sometimes when my husband and I worked shifts we even played the single parent…
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Hello? Pain??
This content explores the fluctuating experiences of living with chronic pain and the challenges of pacing physical activities. It emphasizes the unpredictable nature of pain and the need for self-care and adaptation.
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“Normal” People
The narrator addresses judgmental onlookers, highlighting their hidden health struggles and the impact of judgment. They emphasize the need for empathy and understanding, urging others to refrain from quick conclusions and criticism.
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Self Care
This journal documents the author’s journey with unconventional pain relief methods such as nerve blocks, chiropractic care, and physiotherapy. They stress the importance of self-advocacy in healthcare and urge others to try alternative modalities before dismissing them.
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Mr. Strong And Silent
The author deals with intense emotions, uncertainty, and medical tests for Huntington’s disease. Support from loved ones and determination emerge as key themes in facing challenges ahead.
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Troublemaker!
The author finds humor, sarcasm, and support vital in coping with challenges. Losing their second car has disrupted their routine, causing stress and fatigue. Borrowing a car isn’t a suitable solution.
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Old & New Beginnings
Attending the Huntington Society meeting defied expectations, bringing hope and a new support network. Despite the challenges, the author finds strength in the unwavering support of loved ones.
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What TO DO List
A woman facing a new health challenge prepares her family for the future, sharing her genetic disease diagnosis with friends and even her dentist, determined to raise awareness.
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Help Wanted!
The writer faces difficult decisions regarding healthcare. They opt for trials and genetic research while seeking anonymity for their Huntington’s disease. Family reactions vary, and the writer feels lost and seeks help.
My Everest... 