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Recovery … and Guilt!
The author reflects on a period of recovery, revealing physical limitations and the impact on daily life. They express relief and hope as a long-considered plan to move into a more manageable home comes to fruition.
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Hello Mr. Flare Bear
The writer describes the impact of a planned night out on their health, creating a “flare bear” metaphor for the resulting physical pain. Despite the discomfort, they find joy in small achievements as they recover over the course of several days.
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Self Care
This journal documents the author’s journey with unconventional pain relief methods such as nerve blocks, chiropractic care, and physiotherapy. They stress the importance of self-advocacy in healthcare and urge others to try alternative modalities before dismissing them.
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Listen to DA body!!!
Listening to the body makes you aware of how things are going and if there are any “flare ups”. It helps you learn what is manageable.
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Mr. Strong And Silent
The author deals with intense emotions, uncertainty, and medical tests for Huntington’s disease. Support from loved ones and determination emerge as key themes in facing challenges ahead.
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Troublemaker!
The author finds humor, sarcasm, and support vital in coping with challenges. Losing their second car has disrupted their routine, causing stress and fatigue. Borrowing a car isn’t a suitable solution.
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Old & New Beginnings
Attending the Huntington Society meeting defied expectations, bringing hope and a new support network. Despite the challenges, the author finds strength in the unwavering support of loved ones.
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What TO DO List
A woman facing a new health challenge prepares her family for the future, sharing her genetic disease diagnosis with friends and even her dentist, determined to raise awareness.
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Help Wanted!
The writer faces difficult decisions regarding healthcare. They opt for trials and genetic research while seeking anonymity for their Huntington’s disease. Family reactions vary, and the writer feels lost and seeks help.
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Hope
The author’s family history of MS and Huntington Disease led to testing decisions and emotional turmoil. Despite testing positive for the gene, they are currently symptom-free, facing an uncertain future.
My Everest... 