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My Everest…

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  • Puzzling..puzzled???

    Puzzling..puzzled???

    The author reflects on their own struggles with pain while supporting friends facing similar challenges. They emphasize the importance of understanding and being present through difficult times, likening the healing process to assembling a scattered puzzle.

    My Everest

    May 1, 2025
    Uncategorized
    anxiety, chronic pain, good and bad days, huntington’s disease, pain, puzzle, stress
  • Round !!! 

    Round !!! 

    Concerned about cognitive decline after an embarrassing incident.

    My Everest

    April 24, 2025
    Uncategorized
    cognitive decline, huntington’s disease, pain, physiotherapy
  • Central Sensitization Roulette!!!

    Central Sensitization Roulette!!!

    The author humorously likens their pain management struggles to a roulette game, highlighting the unpredictability of symptoms caused by Central Sensitization. They express frustration with the medical community’s lack of understanding regarding chronic pain and its implications.

    My Everest

    April 17, 2025
    Uncategorized
    central sensitization, flare, huntington’s disease, pain, pain flare
  • I Love my Flare Bear…not!! 

    I Love my Flare Bear…not!! 

    The author reflects on the challenges of post-Christmas activities and the physical toll they take. Feelings of inadequacy arise when considering future limitations with family, prompting an emotional response as they seek solace in writing.

    My Everest

    April 3, 2025
    Uncategorized
    christmas, flare, huntington’s disease, pain, pain flare, stress
  • No Tape? NO BUENO!!

    No Tape? NO BUENO!!

    The author describes the struggle of managing pain without tape, which offers essential support for posture and alleviates discomfort. Without it, simple tasks become exhausting, impacting daily activities and sleep while emphasizing the importance of effective taping.

    My Everest

    April 3, 2025
    Uncategorized
    anxiety, chronic pain, pain, physio tape, stress
  • Are you really ok??

    Are you really ok??

    The author describes a physiotherapy session where decreased range of motion and altered walking patterns are noted. After a message exchange between caregivers, a subsequent massage session focuses on stiff areas, leading to slight improvement in mobility.

    My Everest

    March 27, 2025
    Uncategorized
    hurt, massage appointment, neck, pain, physiotherapy, shoulders, stress, walking
  • OH HO HO the holidays!

    OH HO HO the holidays!

     A day before them comes my brother’s birthday…like who planned that one out??   So we have 3 days in a row of family gatherings. That is a lot of sitting and eating as each day passes my body gets more stiff and sore and as that happens the flare bear starts to get happier…

    My Everest

    March 20, 2025
    Uncategorized
    birthdays, flare bear, holiday, pain
  • Bake, bake, Bake !!! 

    Bake, bake, Bake !!! 

    This week, I enjoyed baking despite challenges, particularly during Christmas. I managed family dynamics at my aunt’s funeral while supporting my uncle, ultimately finding strength in public speaking and humor amidst difficult times.

    My Everest

    March 13, 2025
    Uncategorized
    baking, funeral, holidays, physio
  • SHOUTING makes everything better!!!

    SHOUTING makes everything better!!!

    Family conflicts create stress and emotional turmoil, affecting relationships.

    My Everest

    March 6, 2025
    Uncategorized
    family, flare, huntington’s disease, stress
  • God’s Waiting Room

    God’s Waiting Room

    Nursing homes provide essential care for loved ones nearing the end of life. The narrator reflects on personal experiences with grief and the awkwardness of visiting, emphasizing the importance of maintaining humor and dignity in such situations.

    My Everest

    February 27, 2025
    Uncategorized
    anxiety, death, huntington’s disease, ME Day
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Can’t wait to see what we will do on our Everest climb next time! Blog at WordPress.com.

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