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  • CAG Repeats – HD Walk

    CAG Repeats – HD Walk

    The writer reflects on family gathering, expressing gratitude for support of Huntington Society. They share a creative team t-shirt idea for a walk fundraiser, and embrace progress despite health challenges.

    My Everest

    September 12, 2024
    Uncategorized
    anxiety, Awareness, CAG, chronic pain, HD society, humorous, Hunting for Hope, huntington’s disease, neurological pain, registering, stress, t-shirts, thoughts
  • Boxes, Boxes, and more Boxes!

    Boxes, Boxes, and more Boxes!

    The author shares their experience of packing, dealing with marketplace messages, injuring their thumb, and managing chronic pain. They discuss moments of de-stress and the challenges of finding effective medical treatments.

    My Everest

    September 5, 2024
    Uncategorized
    boxes, cevicogenical headaches, crawl space, drug plan, face pain, injections, migraine, nerve block, neurologist, packing, pain, participation, piles, stress, teeth pain, treatments, wierdness
  • MOOVING

    MOOVING

    Summary: The author is in the process of packing for a move, finding it challenging due to physical discomfort. They tend to disassociate from pain and push themselves despite needing to pace.

    My Everest

    August 29, 2024
    Uncategorized
    arm pain, boxes, breathe, doom, elbow pain, flare bear, flare ups, moving, neck pain, neurological pain, pace yourself, pain, pain train, shoulder pain, take care of yourself
  • Leap of Faith

    Leap of Faith

    A new team, “Hunting for Hope,” was registered for the National Huntington’s Walk. Despite initial uncertainty, the response and support received were heartening. The goal is to raise awareness and knowledge about Huntington’s disease.

    My Everest

    August 22, 2024
    Uncategorized
    Hunting for Hope, leap of faith, National Huntington’s Walk, support, talk about Huntington’s Disease, teams, walk-a-thon
  • Live Life to it’s Fullest!

    Live Life to it’s Fullest!

    A heartwarming encounter with elderly neighbors prompts reflection on seizing life’s opportunities before it’s too late. The author’s determination to make the most of each day, in light of a potential health issue, is evident. Amidst this, special moments with a beloved canine friend add joy to their days.

    My Everest

    August 15, 2024
    Uncategorized
    anxiety, death, dogs, dogsitting, European vacation, excitement, for sale, happiness, HD, huntington’s disease, life is short, motivational, motvate, neurological pain, pain, secret walk, seize the opportunity, special attention, stress, stress relief, travel
  • Topsy Turvy

    Topsy Turvy

    The day started off on the wrong foot with a messy kitchen mishap, leading to a frustrating day. Lack of quality sleep and stress impact physical well-being, emphasizing the vital importance of a good night’s rest for overall health.

    My Everest

    August 8, 2024
    Uncategorized
    balance, clumsy, Frustration, hyperdrive, ideas, kids, magnetic, motions, muffins, pain, personality, physio, sandman, sleep, train, vanilla, white cabinets
  • A Memorable Past

    A Memorable Past

    A memorable past My life prior to this was busy.   As my neighbor would describe it, there was never a time when I wasn’t in the car with or without kids in tow…mostly in tow, driving them to their activities.  Sometimes when my husband and I worked shifts we even played the single parent…

    oliviapacyna02

    August 1, 2024
    Uncategorized
    activities, anxiety, camping, cervical spine, chronic pain, family, family life, flare, friend, huntington’s disease, neurological pain, pain, pain flare, physio, shooting pain, stress, testing
  • Hello? Pain??

    Hello? Pain??

    This content explores the fluctuating experiences of living with chronic pain and the challenges of pacing physical activities. It emphasizes the unpredictable nature of pain and the need for self-care and adaptation.

    oliviapacyna02

    July 25, 2024
    Uncategorized
    anxiety, cervical spine, chronic pain, energizerbunny, flare, flarebear, game of life, huntington’s disease, neurological pain, pain, pain flare, shooting pain, stress
  • “Normal” People

    “Normal” People

    The narrator addresses judgmental onlookers, highlighting their hidden health struggles and the impact of judgment. They emphasize the need for empathy and understanding, urging others to refrain from quick conclusions and criticism.

    oliviapacyna02

    July 18, 2024
    Uncategorized
    anxiety, cervical spine, chronic pain, flare, flarebear, huntington’s disease, neurological pain, normal, pain, pain flare, stress
  • More HISTORY …

    More HISTORY …

    The author led a busy life, juggling work, parenting, and scouting duties. Their physiotherapist turned friend played a pivotal role in their recovery journey after a surgery. Despite setbacks, they persevered.

    oliviapacyna02

    July 11, 2024
    Uncategorized
    activities, anxiety, busy, camping, family, flare, flare up, neurological pain, pain, sports, stress, trailer
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Can’t wait to see what we will do on our Everest climb next time! Blog at WordPress.com.

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