-
Don’t let him Win!!!
The week involved preparations for a family visit, including extra food purchasing and laundry. Despite pain and exhaustion, the narrator embraced help and enjoyed the family gathering, highlighting the challenge of managing chronic pain while staying active.
-
D’oh! Pacing ??
The author expresses a preference for completing chores in one day to avoid prolonged dissatisfaction and guilt, despite physical discomfort.
-
The power of a question…
The author reflects on how responses to the question “how are you?” vary based on the relationship with the asker, highlighting a personal incident in a waiting room where an acquaintance overshared his health issues, prompting contemplation on communication boundaries.
-
Flare bear’s mental health
The author shares experiences with communication challenges, including misunderstandings and interruptions, expressing a need for patience and understanding. They struggle with multitasking and verbal expression but seek clarity in conversations.
-
Hair+meds+menopause=???
The author reflects on their hair journey, which has transformed into unruly curls over time. They struggle with styling due to physical limitations and suspect that menopause and medication may be influencing these changes.
-
Beautiful Prison
The author reflects on their experiences of feeling confined at home, referring to it as a “Beautiful Prison.” They emphasize the importance of brief escapes for mental health, sharing personal stories of isolation and yearning for freedom outdoors amidst challenging circumstances.
-
I need a new pillow..or do I??
The quest for the perfect pillow involved trying various types, including a buckwheat pillow, a too-soft memory foam pillow, and finally a supportive memory foam with cooling gel, which provided a comfortable night’s sleep.
-
Cotton Candy Dream
The conversation reflects on the challenges of Huntington’s disease and the realities of long-term care homes, emphasizing the desire for a peaceful end while acknowledging the emotional toll on families.
-
Stand on guard
Acupuncture has helped calm symptoms, though occasional numbness and tingling in fingers continue to create anxiety about potential issues.
-
No PFD’s for you !
The author reflects on family drama around Huntington’s Disease, emphasizing collective understanding and support, not just personal grievances.
My Everest... 