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Self Care
This journal documents the author’s journey with unconventional pain relief methods such as nerve blocks, chiropractic care, and physiotherapy. They stress the importance of self-advocacy in healthcare and urge others to try alternative modalities before dismissing them.
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Listen to DA body!!!
Listening to the body makes you aware of how things are going and if there are any “flare ups”. It helps you learn what is manageable.
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Mr. Strong And Silent
The author deals with intense emotions, uncertainty, and medical tests for Huntington’s disease. Support from loved ones and determination emerge as key themes in facing challenges ahead.
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Troublemaker!
The author finds humor, sarcasm, and support vital in coping with challenges. Losing their second car has disrupted their routine, causing stress and fatigue. Borrowing a car isn’t a suitable solution.
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Old & New Beginnings
Attending the Huntington Society meeting defied expectations, bringing hope and a new support network. Despite the challenges, the author finds strength in the unwavering support of loved ones.
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What TO DO List
A woman facing a new health challenge prepares her family for the future, sharing her genetic disease diagnosis with friends and even her dentist, determined to raise awareness.
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Help Wanted!
The writer faces difficult decisions regarding healthcare. They opt for trials and genetic research while seeking anonymity for their Huntington’s disease. Family reactions vary, and the writer feels lost and seeks help.
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Hope
The author’s family history of MS and Huntington Disease led to testing decisions and emotional turmoil. Despite testing positive for the gene, they are currently symptom-free, facing an uncertain future.
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Just Keep Swimming!
The author reflects on grappling with chronic pain, adapting activities due to limitations, and finding moments of joy despite the struggle. With unwavering hope and support, she embraces life’s challenges, determined to thrive.
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Meet Evil Face Pain Dr.
The writer experienced a prolonged period of undiagnosed pain, eventually finding relief with a neurologist specializing in migraines. Diagnosed with cervicogenic headaches, treatment includes physiotherapy and nerve blocks, with ongoing pain management. The prospect of Botox or alternative medications is also mentioned for future consideration.
