Tag: neurological pain
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1 year HD Checkup!!
The narrator shares their experience leading up to a medical appointment for Huntington’s Disease testing, expressing anxiety and uncertainty. They recount the various cognitive tests they were subjected to and the initial confusion of a clinical fellow who failed to review their medical history. Ultimately, they received reassuring news that they were clear for another…
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Snug + Comfy + Different = ????
After a flare-up, a cautious physio session turned painful due to tight tape on the shoulders. Enduring escalating neck pain for 4 days, she eventually took medication, highlighting the dilemma of bearing pain or resorting to medication. Communicating even minor discomfort becomes crucial.
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Hospital is not home
While in hospital I had some time to contemplate what this all was that was happening to me. As you are most certainly not sleeping. Hospitals are good for one thing: getting care and meds. The food that they serve you even the homeless people would not eat. One day I was feeling quite…
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CAG Repeats – HD Walk
The writer reflects on family gathering, expressing gratitude for support of Huntington Society. They share a creative team t-shirt idea for a walk fundraiser, and embrace progress despite health challenges.
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MOOVING
Summary: The author is in the process of packing for a move, finding it challenging due to physical discomfort. They tend to disassociate from pain and push themselves despite needing to pace.
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Live Life to it’s Fullest!
A heartwarming encounter with elderly neighbors prompts reflection on seizing life’s opportunities before it’s too late. The author’s determination to make the most of each day, in light of a potential health issue, is evident. Amidst this, special moments with a beloved canine friend add joy to their days.
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A Memorable Past
A memorable past My life prior to this was busy. As my neighbor would describe it, there was never a time when I wasn’t in the car with or without kids in tow…mostly in tow, driving them to their activities. Sometimes when my husband and I worked shifts we even played the single parent…
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Hello? Pain??
This content explores the fluctuating experiences of living with chronic pain and the challenges of pacing physical activities. It emphasizes the unpredictable nature of pain and the need for self-care and adaptation.
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“Normal” People
The narrator addresses judgmental onlookers, highlighting their hidden health struggles and the impact of judgment. They emphasize the need for empathy and understanding, urging others to refrain from quick conclusions and criticism.
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More HISTORY …
The author led a busy life, juggling work, parenting, and scouting duties. Their physiotherapist turned friend played a pivotal role in their recovery journey after a surgery. Despite setbacks, they persevered.
My Everest... 