Tag: movements

• The Need to Move!

  

  Arrgh too much sitting In one position is not good for anyone!!  Well, when asked what my weekend was looking like at one point and I said not much, it turned into craziness.   Historically this week/weekend in my life was always busy with scout stuff to do.  Ironically partly it turned out to be…

  My Everest

  July 17, 2025

  Uncategorized

  appointments, huntington’s disease, movements, pain, sensitive, stiff

• Mr. Strong And Silent

  

  The author deals with intense emotions, uncertainty, and medical tests for Huntington’s disease. Support from loved ones and determination emerge as key themes in facing challenges ahead.

  My Everest

  May 2, 2024

  Uncategorized

  active HD, anoninmity, anxiety, anxious, baseline exam, battling, blood draw, brain on fire, chapter meeting, chronic pain, clinic, cognitive, confidentiality, depression, doctor, doctors, enroll HD, exhaustion, family, family support, flare, gene positive, genetic specialist, geneticists, genetics lab, HD clinical trials, huntington’s disease, huntington’s society, internalizing, mask of pain, meeting, movements, neurological pain, one stop shopping, pain, pain flare, pizza, pizza wars, psychiatrists, repetitiveness, shooting pain, stress, strong and silent, worker