Tag: huntington’s society

• Mr. Strong And Silent

  

  The author deals with intense emotions, uncertainty, and medical tests for Huntington’s disease. Support from loved ones and determination emerge as key themes in facing challenges ahead.

  My Everest

  May 2, 2024

  Uncategorized

  active HD, anoninmity, anxiety, anxious, baseline exam, battling, blood draw, brain on fire, chapter meeting, chronic pain, clinic, cognitive, confidentiality, depression, doctor, doctors, enroll HD, exhaustion, family, family support, flare, gene positive, genetic specialist, geneticists, genetics lab, HD clinical trials, huntington’s disease, huntington’s society, internalizing, mask of pain, meeting, movements, neurological pain, one stop shopping, pain, pain flare, pizza, pizza wars, psychiatrists, repetitiveness, shooting pain, stress, strong and silent, worker

• Old & New Beginnings

  

  Attending the Huntington Society meeting defied expectations, bringing hope and a new support network. Despite the challenges, the author finds strength in the unwavering support of loved ones.

  My Everest

  April 18, 2024

  Uncategorized

  acceptance, anxiety, beginnings, chapter meeting, chronic pain, group therapy, HD, hd horrors, hope, hopeful, horrors, huntington horrors, huntington’s disease, huntington’s society, migraine, migraine specialist, my everest, neurological pain, old and new, pain, shooting pain, stress, symptoms, unpleasant