Tag: gene positive

• Mr. Strong And Silent

  

  The author deals with intense emotions, uncertainty, and medical tests for Huntington’s disease. Support from loved ones and determination emerge as key themes in facing challenges ahead.

  My Everest

  May 2, 2024

  Uncategorized

  active HD, anoninmity, anxiety, anxious, baseline exam, battling, blood draw, brain on fire, chapter meeting, chronic pain, clinic, cognitive, confidentiality, depression, doctor, doctors, enroll HD, exhaustion, family, family support, flare, gene positive, genetic specialist, geneticists, genetics lab, HD clinical trials, huntington’s disease, huntington’s society, internalizing, mask of pain, meeting, movements, neurological pain, one stop shopping, pain, pain flare, pizza, pizza wars, psychiatrists, repetitiveness, shooting pain, stress, strong and silent, worker

• Hope

  

  The author’s family history of MS and Huntington Disease led to testing decisions and emotional turmoil. Despite testing positive for the gene, they are currently symptom-free, facing an uncertain future.

  My Everest

  March 28, 2024

  Uncategorized

  alleiles, anxiety, blood work, death, gene positive, genetic counselor, genetic diseases, genetic history, genetic lottery, genetic testing, genetics, HD, hope, horrible disease, huntington’s disease, lack of sleep, MS, multiple sclerosis, pain, pain train, stress, unpredictable