Tag: family support

• Mr. Strong And Silent

  

  The author deals with intense emotions, uncertainty, and medical tests for Huntington’s disease. Support from loved ones and determination emerge as key themes in facing challenges ahead.

  My Everest

  May 2, 2024

  Uncategorized

  active HD, anoninmity, anxiety, anxious, baseline exam, battling, blood draw, brain on fire, chapter meeting, chronic pain, clinic, cognitive, confidentiality, depression, doctor, doctors, enroll HD, exhaustion, family, family support, flare, gene positive, genetic specialist, geneticists, genetics lab, HD clinical trials, huntington’s disease, huntington’s society, internalizing, mask of pain, meeting, movements, neurological pain, one stop shopping, pain, pain flare, pizza, pizza wars, psychiatrists, repetitiveness, shooting pain, stress, strong and silent, worker

• What TO DO List

  

  A woman facing a new health challenge prepares her family for the future, sharing her genetic disease diagnosis with friends and even her dentist, determined to raise awareness.

  My Everest

  April 11, 2024

  Uncategorized

  als, Alzhiemers Disease, anxiety, anxious, empowerment, family, family support, genetic diseases, genetic non-discrimination act, genetics, HD, huntington’s disease, life insurance, Lou Gehrig’s Diesease, Parkinson’s Disease, support system, vulnerable

• Just Keep Swimming!

  

  The author reflects on grappling with chronic pain, adapting activities due to limitations, and finding moments of joy despite the struggle. With unwavering hope and support, she embraces life’s challenges, determined to thrive.

  My Everest

  March 21, 2024

  Uncategorized

  50/50 lottery, anxiety, challenges, chronic pain, family, family support, flare, flare up, Fun, hope, living life, neck pain, neurological pain, pain, pain flare, pain management, stress