Category: Uncategorized
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Old & New Beginnings
Attending the Huntington Society meeting defied expectations, bringing hope and a new support network. Despite the challenges, the author finds strength in the unwavering support of loved ones.
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What TO DO List
A woman facing a new health challenge prepares her family for the future, sharing her genetic disease diagnosis with friends and even her dentist, determined to raise awareness.
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Help Wanted!
The writer faces difficult decisions regarding healthcare. They opt for trials and genetic research while seeking anonymity for their Huntington’s disease. Family reactions vary, and the writer feels lost and seeks help.
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Hope
The author’s family history of MS and Huntington Disease led to testing decisions and emotional turmoil. Despite testing positive for the gene, they are currently symptom-free, facing an uncertain future.
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Just Keep Swimming!
The author reflects on grappling with chronic pain, adapting activities due to limitations, and finding moments of joy despite the struggle. With unwavering hope and support, she embraces life’s challenges, determined to thrive.
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Meet Evil Face Pain Dr.
The writer experienced a prolonged period of undiagnosed pain, eventually finding relief with a neurologist specializing in migraines. Diagnosed with cervicogenic headaches, treatment includes physiotherapy and nerve blocks, with ongoing pain management. The prospect of Botox or alternative medications is also mentioned for future consideration.
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POOF!
After a discouraging medical assessment, the author struggled to accept their inability to work. Through therapy, mindfulness, and embracing support, they found relief. Surprisingly, bonding with dogs brought unexpected comfort, leading to a newfound source of stress relief and joy.
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‘CENTRAL SENSITIZATION!’ WHAATTTT???
The writer discusses being diagnosed with Central Sensitization, likening it to a broken alarm system in the body. They explain the challenges and unpredictability of managing the condition while seeking relief through various treatments. Despite the frustration, they remain determined to persevere.
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The Huge Learning Curve
The author recounts experiencing persistent flare-ups and the challenges of managing chronic pain post-surgery, expressing humor amidst the struggle. Despite setbacks, they navigate daily activities cautiously and find significance in small victories, highlighting the ongoing battle with pain and the need for constant vigilance.
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New Uncertain Life
After undergoing cervical spine surgery (C5-C6 ACDF), daily tasks became challenging. Following surgery, initial relief was short-lived as chronic pain and limited mobility returned. Despite efforts to return to work and medication adjustments, the struggle persisted, causing distress and uncertainty for the family.
My Everest... 