My Everest…

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  • No Tape? NO BUENO!!

    No Tape? NO BUENO!!

    The author describes the struggle of managing pain without tape, which offers essential support for posture and alleviates discomfort. Without it, simple tasks become exhausting, impacting daily activities and sleep while emphasizing the importance of effective taping.

    My Everest

    April 3, 2025
    Uncategorized
    anxiety, chronic pain, pain, physio tape, stress
  • Are you really ok??

    Are you really ok??

    The author describes a physiotherapy session where decreased range of motion and altered walking patterns are noted. After a message exchange between caregivers, a subsequent massage session focuses on stiff areas, leading to slight improvement in mobility.

    My Everest

    March 27, 2025
    Uncategorized
    hurt, massage appointment, neck, pain, physiotherapy, shoulders, stress, walking
  • OH HO HO the holidays!

    OH HO HO the holidays!

     A day before them comes my brother’s birthday…like who planned that one out??   So we have 3 days in a row of family gatherings. That is a lot of sitting and eating as each day passes my body gets more stiff and sore and as that happens the flare bear starts to get happier…

    My Everest

    March 20, 2025
    Uncategorized
    birthdays, flare bear, holiday, pain
  • Bake, bake, Bake !!! 

    Bake, bake, Bake !!! 

    This week, I enjoyed baking despite challenges, particularly during Christmas. I managed family dynamics at my aunt’s funeral while supporting my uncle, ultimately finding strength in public speaking and humor amidst difficult times.

    My Everest

    March 13, 2025
    Uncategorized
    baking, funeral, holidays, physio
  • SHOUTING makes everything better!!!

    SHOUTING makes everything better!!!

    Family conflicts create stress and emotional turmoil, affecting relationships.

    My Everest

    March 6, 2025
    Uncategorized
    family, flare, huntington’s disease, stress
  • God’s Waiting Room

    God’s Waiting Room

    Nursing homes provide essential care for loved ones nearing the end of life. The narrator reflects on personal experiences with grief and the awkwardness of visiting, emphasizing the importance of maintaining humor and dignity in such situations.

    My Everest

    February 27, 2025
    Uncategorized
    anxiety, death, huntington’s disease, ME Day
  • 1 year HD Checkup!!

    1 year HD Checkup!!

    The narrator shares their experience leading up to a medical appointment for Huntington’s Disease testing, expressing anxiety and uncertainty. They recount the various cognitive tests they were subjected to and the initial confusion of a clinical fellow who failed to review their medical history. Ultimately, they received reassuring news that they were clear for another…

    My Everest

    February 20, 2025
    Uncategorized
    checkup, chronic pain, clock, files, huntington’s disease, neurological pain
  • Man Cold 

    Man Cold 

    The author reflects on the irony of receiving little sympathy when ill, highlighting the disparity in care during sickness. They recount personal experiences of taking care of a sick partner while feeling neglected when they became unwell.

    My Everest

    February 13, 2025
    Uncategorized
    cold, cough, empathy, medication, sick
  •  Flare Bear 

     Flare Bear 

    The author shares experiences with chronic pain, referred to as “Flare Bear,” discussing the unpredictability of flare-ups and the emotional toll they create. They emphasize seeking support from friends and family during difficult times.

    My Everest

    February 6, 2025
    Uncategorized
    anxiety, flare, flare bear, huntington’s disease, pain, shooting pain
  • Ding ding Med cart’s here!!! 

    Ding ding Med cart’s here!!! 

    The author discusses the overwhelming experience of managing multiple medications and the potential need to reduce them, as well as experimenting with new therapies, highlighting the challenges and unexpected reactions during treatment.

    My Everest

    January 30, 2025
    Uncategorized
    flare bear, huntington’s disease, medications, pain
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Can’t wait to see what we will do on our Everest climb next time! Blog at WordPress.com.

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