My Everest…

Next day I am  still all stiff and sore and we have fingers going numb too. It’s a grand old time. I often wonder why my family cannot seem to get through a holiday without drama? I wonder if other families are like ours too and have drama as well?   A nice discussion on the topic of HD would be wonderful but nope it turns into a shouting match because everyone is trying to get their point across and of course their point is more important than the other.  I’m guilty as charged. I have done it also but nothing good ever comes out of this.  So this time when the match started I got up and left to go to the bathroom of course (like I can’t hear them in there).  Fucking 2 year olds !   Are we not supposed to row this HD boat together?  The way we are going we won’t be getting anywhere and this boat will sink.   At this point I will not be providing them with any Personal Flotation Device’s .  I will be secretly installing ejection seats for them on the next ride.   They need to be looking at the big picture of what is going on here but they are not.  Right now they are just looking at the me, me, me side of it.   When we need to look at the we, we, we side of the impact of HD it’s affecting the entire family not just the ones sitting at the table angry and hurt.  It spreads farther and wider than that, a whole hell of a lot wider and we all need to keep our shit together for them.   If they knew what is going on here they would not be pleased with us at all.   HD is a shitbomb don’t get me wrong but we need to move past it and live every moment because we don’t know what is going to happen.  it‘s not only affecting the person that has it or their parents.  It’s affecting the spouses that are around them 24/7, their children and their families.   Just because they don’t talk about it doesn’t mean that they aren’t thinking about it.  They might be thinking about it  even more than you and just not talking about it with you.  They might be talking about it with a social worker or a spouse or a friend.  Anyone who they feel it’s safe to discuss it with.   So just because you are affected by HD in some way remember that the struggle is not yours and yours only it has a ripple effect!